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Supportive and Palliative Care research group: research projects

Below is a list of research projects in the field of supportive and palliative care.

BMH - Nursing - Supportive and Palliative Care: research - Ongoing studies

District nurses and their provision of supportive and palliative care

Abstract

A programme of research investigating the supportive and palliative care work of district nurses: to synthesise current literature; to understand how district nurses enact their role with palliative care patients; and to discover which patients they do and do not provide care for.
 
 
Aims: Three research questions guide these studies:
                   
1)      How, why and when do district nurses provide palliative care to patients?
2)      Which palliative care patients access district nursing services and for what reasons?
3)      Are the palliative care patients accessing district nursing services representative of those who may benefit from such services?
 
 

Study A – Research synthesis: No synthesis or review of the literature surrounding the role of the district nurse (or home based nurses in other countries) in palliative care provision currently exists. A realist synthesis of the literature is planned. The scope and purpose of the review will be further clarified by exploratory literature searching, guided by all three research questions. An exploratory theoretically based evaluative framework will then be developed. Evidence will be gathered, appraised, and extracted, and conclusions drawn with reference to the theoretical framework. 

 

Study B – Ethnographic study of district nursing palliative care practice: This study is primarily designed to answer the first research question: how, why and when do district nurses provide palliative care to patients? The aim is to understand more fully how district nurses provide care to palliative care patients in the context of the complete multi-disciplinary team providing care to those patients. This study will use an ethnographic approach, and in line with contemporary ethnographic thinking, a multi-site, multi-voice approach will be taken, giving equal accord to practitioners, patients (and their carers) of the district nursing services studied.
 

Patients and their carers will be sampled from the population of palliative care patients on district nurse caseloads.  The approach to data collection will be flexible to take account of the different ways care is provided to patients. Observation of the interactions between patients, carers, district nurses, and other care professionals, and the care given and received will form the core data collection method. In-depth interviews with patients, informal carers, district nurses and other involved professionals will follow observation, to explore understandings of observational data.

Study C – Survey of palliative care patients on district nursing caseloads and comparison to the ‘population’ of those who died from cancer during the study period:

This survey is designed primarily to answer the second two research questions: which palliative care patients access district nursing services, and are the palliative care patients accessing district nursing services representative of those who may benefit from such services? This survey will prospectively examine the characteristics of palliative care patients on district nurse caseloads, and make a comparison to those patients who could potentially have accessed such care. Data will be collected recording the frequency and duration of district nursing care to such patients, and an estimation of clinical need made.

Duration of the project

Five years

Funding body

RCUK

Members of the project

Name Role
Dr Catherine Walshe Principal investigator
Professor Karen Luker Advisor
Professor Sheila Payne Advisor

Outputs